OUR STORY

Dementia Disco was founded by Kate, Phil and Nick who all had family members living with dementia.

Kate and Nick’s dad was only 66 when he was diagnosed with Alzheimer’s Disease. There were dementia groups in his area and many of them used music in some way but it often involved singing along to songs from the 40s and 50s. Born in 1950, Kate and Nick’s dad was into music from the 60s and 70s, so it wasn’t a big surprise that these songs didn’t mean much to him.

Phil's gran, Margaret, developed vascular dementia in her early 90s. Phil lost the independent, piano playing, jigsaw loving woman she knew too quickly. Losing someone to dementia is losing someone twice. Starting the Dementia Disco is Phil's way of creating memories of fun with the person you remember them to be and giving them the chance to be their true selves again.

We had identified a gap in our community for activities for younger people living with dementia. Unlike other dementia groups that run during working hours, our discos are held at the weekends and are open to friends and family. We love to see multiple generations dance together.

Our discos are also an opportunity to give the carer a rest as they can stay at home and have a family member or friend bring the person with dementia to the disco.

MEET OUR BOARD
Simon Denegri CBE
Chair
Simon is a senior executive leader in health and research, specializing in governance, strategy, and building public trust. The former Executive Director of the Academy of Medical Sciences, he also chairs Sense About Science and the UKCRC CTU Network, bringing extensive expertise in driving organizational performance.
Matthew Neilson
Treasurer
Matt is the Head of Finance at ASG Group, bringing extensive financial expertise and strategic oversight to our board. As Treasurer, he ensures our financial health and governance, aligning our resources to support the organization's long-term growth and stability.
Philippa Bostock
Trustee
A co-founder of the charity, Philippa is a dedicated educator currently teaching at high schools and universities in the north west. She is a lead educational practitioner of social sciences with a background in teaching music and drama. She brings deep personal insight to the board, driven by her lived experience supporting her grandmother through dementia, ensuring our mission remains deeply rooted in the community we serve.
Nick Shaw
Trustee
Nick is a strategic leader in the charity, education, and social impact sectors, specializing in programmes and partnerships. As a co-founder of Dementia Disco, he brings a wealth of experience in community-focused initiatives, driven by personal lived experience supporting his father through Alzheimer's.
Leah Holmes
Trustee
Leah is an engagement specialist and inclusive practitioner with a proven track record of creating social and research impact. The Director of Vocal Collective CIC and a Wellcome Trust grant recipient, she brings extensive expertise in organizational strategy, community involvement, fundraising, and complex programme management across the research, community, and cultural sectors.
Johnny Noel
Trustee
Johnny brings invaluable lived experience to the board as a former carer for his late wife, Hilda. After attending our Dementia Disco together, Johnny became a dedicated volunteer following Hilda's passing and was instrumental in launching our Poynton disco. At nearly 90 years old, he serves as our biggest cheerleader and a vital voice for carers. Johnny retired as a Training Officer with Manchester social services and previously held a similar post with the Regional health authority.
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